Category Archives: Prematurity

The Value of Life


Fifty years ago the issue of prematurity rose to the forefront of the national conscious with the brief life of Patrick Bouvier Kennedy. Born at 35 weeks, a late-term preemie who’d likely have only the briefest of NICU stints today, the first child born to a sitting U.S. president since 1893 spurred the burgeoning field of neonatology after his death at less than two days old.

This week the New York Times published an op-ed on the ethics of the heroic life-sustaining measures now available to infants at increasingly younger gestational ages. It should not surprise you that this piece sent the preemie community into a tizzy. Continue reading

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Preemie Perspective

Shoe v Tattoo_06-03-13

Jon’s tattoo is the actual size of the boys’ footprints at birth.  The shoe is the very one procured during our recent adventure to the mall. Continue reading


TechMom Tuesday: Reasons I Love My Preemie [an app review]


I write a monthly column over at AlliOSNews. It’s a techie site – extolling all the goodies and gunpowder on the Apple OS. (SHINY TOY!) I’m TechMom. And these are my stories on how technology is really used. This is what you must deal with as I am a Silicon Valley nerd by day.

(I’m well aware it’s Wednesday.  If you want TechMom Tuesday on Tuesdays, head on over to AlliOSNews for all things Apple. TechMom Tuesday is typically published the first Tuesday of every month. I reserve the right to rant more or less as the technical goings-on, well…go on.) Continue reading


Book Review: A Pound of Hope


Jon found me on the couch reading. “Wow. Are you reading a real book?”

And indeed I was. It was a paperback, not my standard digital iAppendage. A Pound of Hope – the story of miracle micropreemie twin boys by Jennifer Kemper Sinconis.  Continue reading


U.S. News & World Report: Premature Births Twitter Chat


This Thursday, U.S. News & World Report, the American Academy of Pediatrics, Children’s Hospital of Philadelphia, and March of Dimes are hosting a live Twitter chat about premature births in the United States. Continue reading


The Closing of a Chapter


To hell with statistics.

The number one question I hear from those familiar with our journey from prematurity through where we are today is, “What are the odds?”

But the truth is – statistics do not matter when you’re living them. All you want is for your child to be ok – whether a 90 percent survival rate or 9.  Continue reading


Counting Down the Moments to 39 Weeks


I thought getting pregnant was going to be the hard part.

Turns out that bright idea merely prompted the universe to remind me that children are life’s way of reminding us that we have no control. Bitch.

What were supposed to be the blissfully ignorant glowing months before motherhood were instead counted down by my own milestone markings. Continue reading

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Where Does the Time Go?


“Mr. Stream? Do you have a moment to chat with me in my office?” the preschool principal began as she approached Jon after drop-off on Monday.

Because that’s not even remotely foreboding to get called to the principal’s office that way. Oh god – the muppets were getting expelled. (Please never underestimate my ability to jump to the worst possible conclusion. Every. Time. It’s a gift.) Continue reading


Most Likely to Inspire You To Change The World… even just a little

Wait – what? Who the hell is Jack?

It was April 2010. I was in the Mom/Baby unit. Room 39 I think (I was the guest of many variations of whatever number it was).

I was lying semi-upright in my newly prescribed bedrest position. Jon was with me. We were waiting for the doctor. I didn’t know when I’d get to go home. I’d been on that hospital third floor for four days and counting – ever since my “routine” checkup revealed that something was amiss, contractions were not Braxton-Hicks, and the muppets were in danger of making a very early arrival. Continue reading


Happy Birthday March of Dimes

March of Dimes Birthday

75 years ago today, President Franklin D. Roosevelt founded the National Foundation for Infantile Paralysis – himself a polio survivor.

Today it’s the March of Dimes. That name was coined in the late 1930s (a play on the contemporary newsreel series “The March of Time”)as the org encouraged children to donate a dime for their annual fundraiser.  Continue reading