Tag Archives: preemies

The Value of Life

NICU

Fifty years ago the issue of prematurity rose to the forefront of the national conscious with the brief life of Patrick Bouvier Kennedy. Born at 35 weeks, a late-term preemie who’d likely have only the briefest of NICU stints today, the first child born to a sitting U.S. president since 1893 spurred the burgeoning field of neonatology after his death at less than two days old.

This week the New York Times published an op-ed on the ethics of the heroic life-sustaining measures now available to infants at increasingly younger gestational ages. It should not surprise you that this piece sent the preemie community into a tizzy. Continue reading

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U.S. News & World Report: Premature Births Twitter Chat

TwitterChat

This Thursday, U.S. News & World Report, the American Academy of Pediatrics, Children’s Hospital of Philadelphia, and March of Dimes are hosting a live Twitter chat about premature births in the United States. Continue reading

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World Prematurity Day: Beating the Odds

Today is World Prematurity Day. Continue reading

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Motherhood Uncovered: Prematurity is a Pain

Today’s Motherhood Uncovered post celebrates November as Prematurity Awareness Month by taking a closer look at the signs and symptoms that may lead to tiny babies.  Continue reading

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March for Babies

Today was the March of Dimes March for Babies. We were Team March with the Muppets. (Self-explanatory – the five mile walk was to take place alongside the Million Dollar Miracle Muppets.) Continue reading

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How Preemie Moms Are Chosen

Erma Bombeck was a humorist with a newspaper column detailing the mundane details of suburban life. (My favorite of her works are compiled in her book, “When You Look Like Your Passport Photo It’s Time To Go Home.”)

Part of me likes to see myself as something like her with this blog. And yet, I have just now discovered her preemie poem. Continue reading

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Unthinkable Thoughts

The U.K.’s Guardian recently posted an article about a 23-weeker. “Nathan was born at 23 weeks. If I’d known then what I do now, I’d have wanted him to die in my arms.” At first glance this seems like a horrible statement – who wishes death upon their child?

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Heartbreaking Shadows

Life isn’t fair.

On Christmas Day, an acquaintance gave birth to twin boys – so obviously I was immediately partial. Then I learned her precious gifts were initially scheduled to arrive in the Easter Bunny’s basket instead of Santa’s sleigh. They were 24 weeks gestation – the minimum considered to be viable outside of the womb.

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Preemie Babies 101

Preemie Babies 101 is a site where preemie parents can find information, comfort and support about the ginormous twist and turns their lives are about to embark upon. I wish I’d found it sooner.

Afton Mower runs the site – her son became an angel at 21w2d gestation; he weighed only 12 ounces and was 10 inches long. Two years later, her daughter was born at 27w3d gestation and spent 94 days in the NICU. (For comparison by muppet enthusiasts, Search and Destroy were born at 27w4d gestation.)

Throughout her experience from the NICU and watching her daughter grow up, she decided to provide a social hub where preemie parents could band together and help each other through the ups and downs of the NICU and raising preemie babies.

Stressed, confused and exhausted parents are invited to read the experiences, opinions, and stories of other preemie parents, and share fears, thoughts, hopes about the strength of all our little miracles.

Today, you can read the muppets story there.

This story may seem familiar to regular readers of the blog. It is updated from its initial iteration in support of the March of Dimes Prematurity Awareness Day.

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Tricia’s Story (Parent Stories)

This story was thoughtfully submitted by one of our readers, Tricia.

I never thought I’d end up a mommy blogger. A world-famous Newbery Medal recipient, sure, but it instead appears my writing talents have headed down the road less traveled. One of my girlfriends started blogging about the random stories of mommyhood shortly after I found out I was pregnant.

My first trimester was rough – not just morning sickness, all day arfing sickness. I had just started a new job in December 2009, so being green on the job took on a whole new meaning. In January, we found out our family was growing a bit faster than expected. Our twins were due in August. In March, we learned our little muppets were two boys. I was finally feeling good.

“I think I’ll start a blog,” I decided one afternoon. I signed myself up on WordPress and there my page template sat for several weeks. No magical article-writing elves appeared to tell my story, so I sat myself down and announced to the global online community that Double Trouble was coming to town. I figured this blog would be a single source location for family and friends. I could sporadically post clever little anecdotes and event photos.

On April 13, I posted an article shouting from the rooftops that I was officialy having a normal pregnancy. Two weeks later, my world turned upside down. I started writing more and more – detailing and journaling my experience on bedrest and ultimately as an ante-partum patient in the hospital as I prayed for healthy twins.

Jon and I became parents on May 28, 2010. Our precious muppets were born weighing 2 pounds 3 ounces and 2 pounds 2 ounces. I held Search in my arms for no more than 10 seconds after his birth. I watched Destroy get wheeled out of the OR wrought with tubes and encased in a plastic incubator.

They were born 12 weeks too soon. And then I passed out.

I didn’t get to meet my muppets the day they were born. I spent hours shivering uncontrollably in a recovery room – demanding water from a nurse who tried my patience to its last nerve by insisting on following medical protocol instead of catering to my thirsty whims. Five hours after they were born, Jon was indoctrinated into life as a NICU parent. He was crying when he came back, but he reported they were doing amazingly well. There were so many wires…

The next day, I learned why people believe in love at first sight. Our nurses and doctors were cautiously optimistic. The muppets were all I could think about. So throughout the next 10 weeks, I took to the Web – sharing my thoughts, feelings and fears to anyone who may happen upon here. As I talked to people and shared our story, it seemed everyone knew someone who was premature. Suddenly, my new normal was “preemie parenthood.” Term babies seemed jumbo and odd.

I found the March of Dimes website accidentally as I scoured the Internet looking for any and all information on the hospital jargon being thrown at me. I became a mother on a mission. My boys were coming home healthy if I had to get a medical degree to do it.

The NICU staff laughed. “When you leave here, we’ll be sending you home part parent, part nurse.”

I never thought prematurity would be the cause I’d get behind. I did everything I was supposed to, but fate/humanity had other ideas and life isn’t fair. My body was broken but my boys are fighters.

The muppets are now more than seven months old. They’re laughing now (and having a grand old time spitting rice cereal raspberries) and it’s hard to remember how tiny they truly were when we first started our journey home.

I’m proud to be a preemie-parent. And I’m proud to be the mom to such nifty NICU grads. Next week our family will return to the hospital for a well-check with our pediatrician, and I expect at least one of the boys to tip the scales at 17 pounds – a far cry from tiny two pounders.

Thanks for getting the word out.

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March With the Muppets

Every year, millions of people resolve to get fit and healthy. It is by far the most popular end-of-year resolution. Well, the new year has arrived and it’s back to reality. Vacation is over and we’re back to our daily routines. It’s the third day of the year – so right about the time that New Year’s Resolutions go out the window.

Last year this blog’s main focus was on the new normal of prematurity. This year is a fresh start and, since the muppets are big giant babies these days, I foresee a theme of the hilarity of early childhood. To aid this thematic transition, I would like to present you all with an opportunity to keep that popular resolution.

The March of Dimes March for Babies is an event that raises money in support of programs that help moms have healthy, full-term pregnancies. And it funds research to find answers to the problems that threaten our babies (like being diagnosed as “tiny”). These walks have been taking place since 1970 and have raised an incredible $2 billion to date.

On May 15, 2011, the muppets will be walking in support of all tiny babies. Start training now for the five-mile jaunt in Gilroy, CA. (Five miles may not seem like much until you try marching it behind a twin double stroller…)

And we want to see you there: Friends, family, nurses, preemie parents, MoMs, double trouble enthusiasts…

Join our Team
Join me and the Classy Moms mothers group in this fight for health – yours five miles down the trail and all the little lives the March of Dimes will touch.

Officially join our team at http://www.marchforbabies.org/team/MarchWithTheMuppets

Why is our fundraising goal $270? Seems like a random trivial amount considering it’s in honor of the million dollar miracle muppets doesn’t it? I designated this as our team goal as a symbol of our honorees – born at 27 weeks gestation. This isn’t a fundraising ploy – this is a request to come out and walk with us in a show of support for your favorite muppets and all their peers.

March for Babies take place all over the nation – look for one near you if the Muppet March is geographically undesirable for you.

I am so immensely grateful for all the care the muppets received during their harrowing first few months; I wholeheartedly support anything that potentially eliminates the need for the 2010 preemie chapter of this blog.

So get started on that fitness resolution. Start walking. You’ve got five miles in front of you. The muppets have so many more.

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